Where Does the Money Go?

A sampling of local services provided free of charge to people and families living with ALS include:

  • One-on-one consultations to assess the needs of those living with ALS, suggest equipment and help families plan for the future.
  • A Medical Equipment Loan Program that provides mobility and communication equipment when insurance and other programs cannot fund needed items.
  • A comprehensive Alternative Communication and Assistive Technology Program.
  • Caregiver support groups, Share the Care™ guidance, and respite care grants to relieve stress and “caregiver burnout”.
  • Monthly resource support groups for people living with ALS, family members, caregivers and friends.
  • Partnerships in ALS multidisciplinary clinics staffed by professionals with ALS expertise.
  • Outreach to the local medical community with updates on current ALS needs and solutions. 

Funding also supports local and national public policy efforts as well as internationally-driven research focused on finding a treatment and ultimately, a cure for ALS. Our chapter does not receive any government or insurance funding.

Where the Money Goes