Create a world without ALS.
To discover treatments and a cure for ALS, and to serve, advocate for, and empower people affected by ALS to live their lives to the fullest.
About The ALS Association
The ALS Association is the only
organization leading the fight to discover a cure for ALS from all angles
robust research, care,
public policy programs. Our solution is
an integrated approach that will lead us to viable treatments and cure for this
RESEARCH | The
ALS Association is at the forefront of the global research effort funding over
$138 million in research and clinical management projects. To maximize results, The Association channels
our funding, made possible through the generous support of donors, into global
research projects focused on six tightly-related areas:
cells for disease modeling and therapy testing
CARE SERVICES | The
ALS Association helps patients and families cope with the day to day challenges
of living with ALS by providing information, resources, and referrals to many
sources, including a wide variety of community services through our nationwide
Our nationwide network of ALS Association
Certified Centers of Excellence provide state-of-the-art, multi-disciplinary
ALS care and services in a supportive atmosphere with an emphasis on hope and
quality of life. To become certified as one of these centers of excellence, an
ALS clinic must achieve national prominence, meet rigorous clinical care
standards, and pass a comprehensive site inspection.
PUBLIC POLICY | Our
nationwide network plays a integral role in advocating for increased public and
private support of ALS research and patient care. The ALS Association’s public policy efforts
in Washington D.C. have raised the profile of ALS by
working with the White
House, Congress, National
of Health, Centers for Medicare and Medicaid Services, Food and Drug
Administration, Department of Defense, Department of Veterans Affairs, Social
Centers for Disease Control and Prevention.
About ALS (Lou Gehrig's Disease)
Amyotrophic Lateral Sclerosis (ALS), also
known as Lou Gehrig’s Disease, is a progressive neurodegenerative disease that
slowly robs a person of the ability to walk, talk, eat and, eventually
breathe. With no known cause or cure, a person can expect to live about 2
to 5 years from the time of diagnosis.
ALS has no racial, ethnic or socioeconomic
boundaries and in only 10% of cases, there is a family history of ALS. Today,
there are approximately 30,000 people in the US living with ALS (more than 1,600 in Florida alone) and 5,600
people are diagnosed each and every year in the US.
Did You Know?
On February 1, 2017, Charity Navigator, America’s largest and most-utilized independent evaluator of charities, has awarded The ALS Association Florida Chapter the prestigious 4-star rating for the third consecutive year for good governance, sound fiscal management, and commitment to accountability and transparency.
Charity Navigator works to help charitable givers make intelligent giving decisions by providing information on more than five thousand charities nationwide and by evaluating their financial health. It calculates each charity’s score based upon several broad criteria, including how much is spent per dollar raised, what percentage of funds goes to programs vs. administrative and fund-raising expenses, and the organization’s long-term financial health. It then assigns a rating from one to four, with four being the best rating.
For more information about financial rating of the Florida Chapter, CLICK HERE.