Our Vision

Create a world without ALS.

Our Mission 

To discover treatments and a cure for ALS, and to serve, advocate for, and empower people affected by ALS to live their lives to the fullest.

About The ALS Association

The ALS Association is the only organization leading the fight to discover a cure for ALS from all angles - through robust research, care, and public policy programs.  Our solution is an integrated approach that will lead us to viable treatments and cure for this terrible disease.

RESEARCH | The ALS Association is at the forefront of the global research effort funding over $138 million in research and clinical management projects.  To maximize results, The Association channels our funding, made possible through the generous support of donors, into global research projects focused on six tightly-related areas:

    • Identifying ALS genes
    • Understanding disease mechanisms
    • Using stem cells for disease modeling and therapy testing
    • Finding disease biomarkers
    • Developing therapies
    • Improving clinical trials

 

CARE SERVICES | The ALS Association helps patients and families cope with the day to day challenges of living with ALS by providing information, resources, and referrals to many sources, including a wide variety of community services through our nationwide chapter network.

Our nationwide network of ALS Association Certified Centers of Excellence provide state-of-the-art, multi-disciplinary ALS care and services in a supportive atmosphere with an emphasis on hope and quality of life. To become certified as one of these centers of excellence, an ALS clinic must achieve national prominence, meet rigorous clinical care standards, and pass a comprehensive site inspection.

 

PUBLIC POLICY | Our nationwide network plays a integral role in advocating for increased public and private support of ALS research and patient care.  The ALS Association’s public policy efforts in Washington D.C. have raised the profile of ALS by working with the White House, Congress, National Institutes of Health, Centers for Medicare and Medicaid Services, Food and Drug Administration, Department of Defense, Department of Veterans Affairs, Social Security Administration, and Centers for Disease Control and Prevention.

 

About ALS (Lou Gehrig's Disease)

Amyotrophic Lateral Sclerosis (ALS), also known as Lou Gehrig’s Disease, is a progressive neurodegenerative disease that slowly robs a person of the ability to walk, talk, eat and, eventually breathe. With no known cause or cure, a person can expect to live about 2 to 5 years from the time of diagnosis.

ALS has no racial, ethnic or socioeconomic boundaries and in only 10% of cases, there is a family history of ALS.  Today, there are approximately 30,000 people in the US living with ALS (more than 1,600 in Florida alone) and 5,600 people are diagnosed each and every year in the US.

Challenge ALS - Ice Bucket Impact

 

Did You Know?

Charity Navigator Logo

On February 1, 2017, Charity Navigator, America’s largest and most-utilized independent evaluator of charities, has awarded The ALS Association Florida Chapter the prestigious 4-star rating for the third consecutive year for good governance, sound fiscal management, and commitment to accountability and transparency.  

Charity Navigator works to help charitable givers make intelligent giving decisions by providing information on more than five thousand charities nationwide and by evaluating their financial health.  It calculates each charity’s score based upon several broad criteria, including how much is spent per dollar raised, what percentage of funds goes to programs vs. administrative and fund-raising expenses, and the organization’s long-term financial health.  It then assigns a rating from one to four, with four being the best rating.

For more information about financial rating of the Florida Chapter, CLICK HERE.