Thank you for giving HOPE in 2020 because people with ALS can’t wait. Despite the unusual circumstances of 2020, let me share some of the HOPE that was seen:
Many advancements in research including the testing of AMX0035 which was shown to be safe and effective at slowing the progression of ALS and helping people live longer. This research was one of the first projects to be funded from the Ice Bucket Challenge in 2014 which raised over $200 million.
Biogen currently has three ALS clinical studies which is very encouraging.
Passage of the ALS Disability Insurance Access Act which ends the 5 month waiting period for ALS patients to start receiving Social Security Disability Benefits.
Congress authorized $40 million for research at the Department of Defense ALS Research Program.
$470,000 in scholarships provided for kids impacted by ALS so they can continue their education.
None of this would have been possible without your support for which I say a heartfelt thank you. The 2020 Walk to Defeat ALS remained virtual throughout the year, but 170 “Walk Your Way” virtual events in 2020 raised more than $17 million for care, support and research.
Mark your calendars! April 17 is the date for the 2021 Walk at Seven Bridges Grill/Tinseltown. There will be two options for this year’s walk: 1) participate in the “Parade of Hope” from the comfort of your car or 2) stand alongside the parade route and cheer. Participants will be asked to wear a mask and follow all social distancing guidelines. . Check in begins at 8:30 am and the parade at 9:30 am.
Why We Need Your Help
Often referred to as Lou Gehrig's Disease, Amyotrophic lateral sclerosis (ALS) is a progressive, fatal neuromuscular disease that slowly robs the body of its ability to walk, speak, swallow and breathe.
The life expectancy of an ALS patient averages 2 to 5 years from the time of diagnosis.
Every 90 minutes a person in this country is diagnosed with ALS and every 90 minutes another person will lose their battle against this disease.
ALS occurs throughout the world with no racial, ethnic, or socioeconomic boundaries. This crippling disease can strike anyone.
Presently there is no known cause or cure for the disease. It costs loved ones an average of $200,000 a year to provide the care ALS patients need.
Help make a difference and donate today.
