Our dear Nayyar Sultana Khan passed away on Tuesday, December 10th, 2019. She was diagnosed with ALS (also known as Lou Gehrig's Disease) in 2007 and had first observed symptoms in 2005. For the last several years of her life, she lost control of voluntary motor functions, and even involuntary functions such as breathing become increasingly difficult. She communicated via the eye-gaze method through her Tobii Dynavox.
While there is still no cure, a lot of valuable research and awareness occurred in the past few years including the 2014 “ALS Ice Bucket Challenge”. The hope is that one day we will find a cure for ALS so no one else will ever have to suffer from this fatal disease.
The resources for additional research come from awareness and fundraising campaigns like the annual Walk to Defeat ALS event held throughout Florida. Furthermore, groups like The ALS Association help with medical necessities and temporary respite assistance which provides much needed relief to ALS patients and their family members living with them.
The ALS Association's Annual Walk to Defeat ALS event will be held Saturday, March 7th at Elva Rouse Park in St. Petersburg, Florida. The address is 1001 N Shore Dr NE St. Petersburg, FL 33701. The location is near the old pier in downtown St. Petersburg.
Check-in starts at 9:30 AM and the walk officially starts at 11 AM.
If you cannot attend physically, you can still donate online and support the cause. Every dollar counts, so anything you could spare would greatly be appreciated by ALS patients and their families.
You either can use your previous login information or register as a new participant. When donating online, please make sure to donate to any member of the team (including yourself) so that it reflects team contributions from Sultana Squad. All donations are tax deductible. You can also donate at the actual event, but again, just make sure to specify the team name “Sultana Squad.”
Many thanks, and we look forward to seeing you all at the walk Insh'Allah. Feel free to invite family members and friends as well.