Thank
you for your registration and participation in the "Ask the Experts: Help for Today and Hope for Tomorrow" educational symposium on Saturday, January 25, 2020. If you haven't already done so, we would greatly appreciate
your feedback on the speakers and presentations by completing the
survey below. Thank you in advance for your input and comments!
*
Question - Required -
What is your ALS connection?
Select
I am a person with ALS
I am a family member of a person with ALS
I am a healthcare provider for people with ALS
I am affiliated with an organization that serves the ALS community
Other
I prefer not to say
*
Question - Required -
How were you able to participate in the Ask the Experts?
Select
I attended in person
I watched online
I was not able to attend
For each of the speakers, please indicate the following:
SPEAKER #1. Abirami Muthukumaran, MD - "ALS 101"
Question - Not Required -
Please tell us how relevant you found this topic:
Select
5 = Extremely useful
4 = Very useful
3 = Useful
2 = Somewhat useful
1 = Not useful
Question - Not Required -
Overall, tell us what you thought of this presentation:
Select
5 = Outstanding
4 = Very good
3 = Good
2 = Fair
1 = Poor
Question - Not Required -
What if anything, would you change about this presentation?
SPEAKER #2: Matthew Burford, MD - "ALS Treatments, Where Are We Now?"
Question - Not Required -
Please tell us how relevant you found this topic:
Select
5 = Extremely useful
4 = Very useful
3 = Useful
2 = Somewhat useful
1 = Not useful
Question - Not Required -
Overall, tell us what you thought of this presentation:
Select
5 = Outstanding
4 = Very good
3 = Good
2 = Fair
1 = Poor
Question - Not Required -
What, if anything, would you change about this presentation?:
SPEAKER #3: Jessica Besbris, MD Neuropalliative Specialist - "How Palliative Care Can Enhance ALS Care Throughout Illness"
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Please tell us how relevant you found this topic:
Select
5 = Extremely useful
4 = Very useful
3 = Useful
2 = Somewhat useful
1 = Not useful
Question - Not Required -
Overall, tell us what you thought of this presentation:
Select
5 = Outstanding
4 = Very good
3 = Good
2 = Fair
1 = Poor
Question - Not Required -
What, if anything would you change about this presentation?
SPEAKER #4: Tara A. Jones, MS, LCGC - " Genetic Testing for ALS: Is it for Me?"
Question - Not Required -
Please tell us how relevant you found this topic:
Select
5 = Extremely useful
4 = Very useful
3 = Useful
2 = Somewhat useful
1 = Not useful
Question - Not Required -
Overall, tell us what you thought of this presentation:
Select
5 = Outstanding
4 = Very good
3 = Good
2 = Fair
1 = Poor
Question - Not Required -
What, if anything, would you change about this presentation?
SPEAKER #5: Princess Albania, OTR/L II - "The Benefits of Smart Home Technology for Patients with ALS"
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Please tell us how relevant you found this topic:
Select
5 = Extremely useful
4 = Very useful
3 = Useful
2 = Somewhat useful
1 = Not useful
Question - Not Required -
Overall, tell us what you thought of this presentation:
Select
5 = Outstanding
4 = Very good
3 = Good
2 = Fair
1 = Poor
Question - Not Required -
What, if anything, would you change about this presentation?
SPEAKER #6: Jessica Limtao, PT, DPT, NCS "Wheelchair Seating and Mobility"
Question - Not Required -
Please tell us how relevant you found this topic:
Select
5 = Extremely useful
4 = Very useful
3 = Useful
2 = Somewhat useful
1 = Not useful
Question - Not Required -
Overall, tell us what you thought of this presentation:
Select
5 = Outstanding
4 = Very good
3 = Good
2 = Fair
1 = Poor
Question - Not Required -
What if anything, would you change about this presentation?
SPEAKER #7: Robert H. Baloh, MD, PhD, Director of Neuromuscular Medicine, Cedars-Sinai
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Please tell us how relevant you found this topic:
Select
5 = Extremely useful
4 = Very useful
3 = Useful
2 = Somewhat useful
1 = Not useful
Question - Not Required -
Overall, tell us what you thought of this presentation:
Select
5 = Outstanding
4 = Very good
3 = Good
2 = Fair
1 = Poor
Question - Not Required -
What, if anything, would you change about this presentation?
SPEAKER #8: Clive Svendsen, PhD, Chair, California ALS Research Network; Director, Cedars-Sinai RMI
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Please tell us how relevant you found this topic:
Select
5 = Extremely useful
4 = Very useful
3 = Useful
2 = Somewhat useful
1 = Not useful
Question - Not Required -
Overall, tell us what you thought of this presentation:
Select
5 = Outstanding
4 = Very good
3 = Good
2 = Fair
1 = Poor
Question - Not Required -
What, if anything, would you change about this presentation?
SPEAKER #9: Merit Cudkowicz, MD, Director, Sean M. Healey and AMG Center for ALS, Mass General
Question - Not Required -
Please tell us how relevant you found this topic:
Select
5 = Extremely useful
4 = Very useful
3 = Useful
2 = Somewhat useful
1 = Not useful
Question - Not Required -
Overall, tell us what you thought of this presentation
Select
5 = Outstanding
4 = Very good
3 = Good
2 = Fair
1 = Poor
Question - Not Required -
What if anything would you change about this presentation?
In regards to the OVERALL PROGRAMING, please indicate the following:
Question - Not Required -
For the CLINICAL PRESENTATIONS of the day's programing, what ONE tip or piece of valuable information did you gain that you plan to utilize?
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For the CLINICAL PRESENTATIONS of the day's programing, what aspects of the program would you LIKE to see or NOT LIKE to see at future events?
Question - Not Required -
For the BARBER RESEARCH AWARD POSTER PRESENTATIONS of the day's programing, what aspects of the program would you LIKE to see or NOT LIKE to see at future events?
Question - Not Required -
For the RESEARCH PRESENTATIONS of the day's programing, what ONE piece of scientific information did you learn that you did not know previously or find valuable?
Question - Not Required -
For the RESEARCH PRESENTATIONS of the day's programing, what aspects of the program would you LIKE to see or NOT LIKE to see at future events?
Question - Not Required -
In general, what topics - either clinical or research - would you like to see addressed at future Ask the Experts events?
Question - Not Required -
If you participated IN PERSON at the event, what would you like to share regarding your experience? (examples: quality of the room, location, food, sound, exhibitors, check in process, etc)
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If you participated ONLINE for this event, what would you like to share regarding your experience? (examples: quality of the video/sound, submitting questions, etc)
Question - Not Required -
Would you attend another Ask the Experts event?
Select
Yes
No
Maybe
Online only
Question - Not Required -
Is there anything else that you would like to share with us about this event?