|
Thank you for visiting our "In the News" section, a valuable resource for both the community and media professionals. Request "Connections" eNewsletter and receive regular clinical and scientific updates, advocacy updates and other highlights from The ALS Association Florida Chapter.
Our Recent Headlines
Monday, September 21, 2009
"ALS hero"
A daughter decides to organize the Tour de Vie bike ride fundraiser in order to honor her mom.
READ THE FULL STORY HERE!
Friday, September 18, 2009
"Raising awareness for Lou Gehrig's disease in southwest Florida"
The piece by piece display at Coconut Point mall in Estero raised much awareness for ALS.
READ THE FULL STORY HERE!
Friday, September 18, 2009
"ALS exhibit travels to Coconut Point Mall"
The display featured 15 mannequins all wearing black tshirts. The display is traveling across the state with a somber purpose.
READ THE FULL STORY HERE!
Tuesday, September 15, 2009
"Cycling event honors ALS victim"
Three months before Roz Jeffrey was diagnosed with Amyotrophic Lateral Sclerosis, she and her husband were sailing the Greek islands.
READ THE FULL STORY HERE!
Monday, September 14, 2009
"Playing for charity"
The fifth annual ALS Amelia Golf Classic was held July 31 at Long Point on Amelia Island Plantation.
READ THE FULL STORY HERE!
Saturday, September 12, 2009
"Lee county ALS clinic opens"
A first of its kind health clinic opened on Saturday in Southwest Florida to help terminally ill patients.
READ THE FULL STORY HERE!
Thursday, September 10, 2009
"Lee county's first-of-its-kind clinic opens"
READ THE FULL STORY HERE!
Saturday, September 5, 2009
"ALS exhibit suits sufferers with a T-shirt"
READ THE FULL STORY HERE!
Monday, August 17, 2009
"Traveling exhibit raises ALS awareness"
'Piece by Piece' tour created by Tampa ad agency
Thursday, August 13, 2009
"Potential new treatment for patients with Lou Gehrig's disease"
The treatment, ISIS-SOD1RX, is designed to shut down the RNA that enables the production of disease-causing proteins and targets superoxide dismutase, or SOD1, a molecule associated with an inherited, aggressive form of ALS.
READ THE FULL STORY HERE!
Thursday, August 6, 2009
"Chance of a Lifetime"
It was the chance of a lifetime. An Orlando man
battling ALS threw out the first pitch at the Rays -
Red Sox game Wednesday night.
WATCH THE INTERVIEW HERE!
Tuesday, August 4, 2009
"Combining Bad, Good Cells in ALS"
Follow the link below for exciting research information funded
by The ALS Association.
GET THE INFORMATION HERE!
Wednesday, July 29, 2009
“Center for Disease Control Gives Tips on How to Help Prevent Swine Flu”
Follow the link below to find helpful social media tools to stay informed on the Swine Flu outbreak.
GET THE INFORMATION HERE!
Sunday, July 19, 2009
"Group Putting Spotlight on Lou Gehrig's Disease"
Mannequin Display at Merritt Square Mall in Tampa
GET THE STORY HERE!
Thursday, July 16, 2009
"150 Mannequins go on Display in Maitland"
It's not every day you see 150 headless torsos.
GET THE STORY HERE!
Wednesday, July 8, 2009
“Couple finish 765-mile Memphis to Grand Rapids bike ride to raise money for ALS Association”
After completing a 765-mile bicycle ride from Memphis, Tenn., to raise money for the ALS Association, Bob Wood embraced his older sister, Jana Wood, at the finish line.
READ THE FULL STORY HERE!
Wednesday, July 1, 2009
“Major League Baseball clubs hold special on-field ceremonies on July 4th to honor 70th anniversary of Lou Gehrig's farewell speech”
Every Major League Baseball Club playing at home on July 4th will conduct a special on-field ceremony to commemorate Lou Gehrig's Yankee Stadium farewell speech.
READ THE FULL STORY HERE!
Friday, June 19, 2009
“New Air Travel Rules for pALS!”
There are new rules for passengers traveling with respiratory and other medical equipment. Find out the specific regulations at the link below.
READ THE FULL STORY HERE!
Friday, May 22, 2009
“Lawn chemicals may trigger ALS”
It has been determined that a common environmental chemical may increase the risk for developing ALS. Chemicals, such as fertilizers and pesticides used in gardening and lawn care, may also cause ALS.
READ THE FULL STORY HERE!
Monday, May 18, 2009
"What do Lou Gehrig and Mannequins Have in Common?"
GET THE STORY HERE!
Thursday, May 7, 2009
"ALS sufferer packs life into his life sentence"
Franks thinks death row inmates have an advantage he doesn't.
GET THE FULL STORY HERE!
Thursday, May 7, 2009
"Mannequin display to highlight ALS impact in Florida"
The display is making four stops on the First Coast this month.
GET THE FULL STORY HERE!
Monday, April 13, 2009
"Piece by Piece Display"
WATCH THE VIDEO HERE!
Tuesday, March 3, 2009
"Piece by Piece"
A sea of mannequins greeted lawmakers and lobbyists as they arrived at the Florida Capitol Tuesday.
GET THE STORY HERE!
Tuesday, March 3, 2009
"ALS Awareness at Florida's Capitol"
GET THE STORY HERE!
February 26,2009
“New Gene Mutation Discovery by ALS Association”
Consortium is Major Research Breakthrough
READ THE FULL STORY HERE!
Monday, January 26, 2009
"ALS Hero"
There was this idea that ALS steals its victims limbs, and their ability to communicate with the rest of the world and live for that matter -- piece by piece," Dunn said.
GET THE STORY HERE!
Thursday, January 15, 2009
"Downtown Mannequin Torsos Symbolic of Disease"
Most people know the name, but not the disease.
READ THE FULL STORY HERE!
Thursday, January 15, 2009
"Unusual Display Gives Voice to ALS Sufferers"
At first glance you think it's some sort of fashion event: 150 mannequins dressed
in black t-shirts, carefully aligned and positioned.
READ THE FULL STORY HERE!
Monday, January 12, 2009
"Lou Gehrig's disease can't keep Steve Franks off the road"
A doctor gave Steve Franks five years to live. That was five years ago.
READ THE FULL STORY HERE!
Saturday, June 12, 2008
"ALS victim: Determined to make a memory"
Peggy McElwee rode onto the field in her heavy, motorized wheelchair, stopping behind home plate at the Baseball Grounds of Jacksonville.
READ THE FULL STORY HERE
Sunday, June 22, 2008
"Man's disease gives in to baseball dream"
Christine Brogle methodically chews a piece of Big Red gum to keep the tears away as she waits for the Rays to take on the Chicago Cubs.
READ THE FULL STORY HERE!
Monday, June 9, 2008
"NBC2 and Health Matters"
View the medical reports aired on ALS. Hear what local doctors, and other health care professionals have to say about ALS as they share their expertise, along with heart-warming patient stories that will offer insight into living with the disease.
VIEW THE VIDEO REPORTS HERE!
Wednesday, May 28, 2008
"How Stem Cells Could Fight Lou Gehrig's Disease"
Patients with Lou Gehrig's disease face a dismal prognosis. The only approved drug, Sanofi-Aventis's Rilutek, slows the fatal muscle-wasting disease by just a few months. Numerous experimental drugs have flopped in trials.
READ THE FULL STORY HERE!
Thursday, May 22, 2008
"Jacksonville ALS Awards Dinner"
CLICK HERE TO VIEW PHOTOS
Thursday, May 22, 2008
"Former soldier raises awareness for ALS"
Ken Patterson is no longer a soldier, but he is on a mission.
His aim: spreading the word about Lou Gehrig's disease.
His current rate is about 5 mph. Literally.
READ THE FULL STORY HERE!
Sunday, May 20,2008
"Orlando to D.C. ... by Wheelchair"
A trip of a lifetime is over for a local man living with Amyotrophic Lateral Sclerosis (ALS), also known as Lou Gehrig's disease.
READ THE FULL STORY HERE!
Monday, May 19, 2008
"FOX 4 Rising"
Watch patient Leon Peak and PR Coordinator for The ALS Association Florida Chapter Kamden Kuhn, talk about Lou Gehrig's disease.
WATCH THE VIDEO HERE!
Monday, May 19,2008
"Journey of a Lifetime"
Man with Lou Gehrig's disease rides from Florida to D.C. in his wheelchair.
WATCH THE VIDEO HERE!
Friday, May 2, 2008
"ALS Awareness Month"
Florida legislators have made the month of May "A-L-S awareness month."
READ THE FULL STORY HERE!
Saturday, April 26, 2008
"Volunteers Put Best Foot Forward"
While their classmates enjoyed fun-filled field trips during a short semester break last week, 10 students from Seffner Christian Academy were working in an office helping log donations to The ALS Association Florida Chapter.
READ THE FULL STORY HERE!
Tuesday, April 22, 2008
"Wheelchair Ride To Washington For ALS Awareness"
A Central Florida man is on a mission. He's traveling all the way to the nation's capitol to lobby lawmakers about ...
WATCH THE VIDEO HERE!
Sunday, April 20, 2008
"ALS saps professor's strength, not his ideals"
A dying professor believes in the law. His students believe in God. The only faith they share is in each other.
READ THE FULL STORY HERE!
Friday, April 18, 2008
"Man Kicks Off Wheelchair Ride To Washington For ALS"
Hundreds of people in Orange County hit the road at Blue Jacket Park as part of a walk to raise awareness for Amyotrophic Lateral Sclerosis, better known as ALS, or Lou Gehrig's Disease.
READ THE FULL STORY HERE!
Thursday, April 17, 2008
"FEMA trailer toxin linked to Lou Gehrig's disease"
Earlier this year, the U.S. Centers for Disease Control and Prevention confirmed that trailers the Federal Emergency Management Agency provided to families displaced by Hurricane Katrina were contaminated with dangerously high levels of formaldehyde. Now, a new study suggests that the chemical -- which has already been linked to cancer and respiratory illnesses -- carries another risk: amyotrophic lateral sclerosis, commonly known as Lou Gehrig's disease.
READ THE FULL STORY HERE!
Thursday, April 17, 2008
"America's heroes hit hard by Lou Gehrig's disease"
Bill Motley is proud of his Army service in Vietnam. He’s glad he got out alive to raise six kids. But Motley’s military past may now be haunting him.
READ THE FULL STORY HERE!
Wednesday, April 16, 2008
"Walk to Defeat ALS will help local veteran"
After fighting in five combat tours in Iraq and Afghanistan since 2003, Beau MacVane is now fighting a different kind of battle.
READ THE FULL STORY HERE!
Friday, April 11, 2008
"Dunedin man walks for Lou Gehrig's disease cure"
Bill Motley served in the U.S. Army during the Vietnam War and later sweated his way through 16 marathons.
READ THE FULL STORY HERE!
Friday, April 11, 2008
"Builders Care, ICI Homes Lead Remodeling"
In an open area of green pasture on Florida 16 sits a house that is filled with love.
READ THE FULL STORY HERE!
Sunday, April 6, 2008
"Another Challenge On Faith Driven Family"
Faith, hope and love were the forces that helped the Goodall family see their new home remodeled in just 10 days.
READ THE FULL STORY HERE!
Friday, April 4, 2008
|
"Mom is still certain 'God is on our side" | Her husband is dying and her son is in the hospital with leukemia.
READ THE FULL STORY HERE
Friday, April 4, 2008
"More woes beset the Goodall family"
The dad has ALS and the oldest son is being treated for leukemia.
READ THE FULL STORY HERE
Friday, April 4, 2008
"Son of Man With ALS Diagnosed With Leukemia"
A St. Augustine family that has received a lot of help from the community because their father has Lou Gehrig's disease recently learned it is facing another medical setback -- leukemia.
READ THE FULL STORY HERE!
Thursday, April 3, 2008
"Man Drives Wheelchair From Florida To DC"
Ken Patterson Sr. has ALS disease. He is riding in a motorized wheelchair from Florida to Washington, D.C., and is passing through the Triad.
READ THE FULL STORY HERE!
Monday, March 31, 2008
"Family Of 8 Gets First Look At Newly Renovated Home"
A local family of eight that has been dealing with a deadly disease got a big boost Saturday afternoon, when the family's newly renovated home was revealed.
READ THE FULL STORY HERE!
Saturday, March 28, 2008
"ALS Walk In Jacksonville"
CLICK HERE TO VIEW PHOTOS FROM THE WALK
Saturday, March 29, 2008
"Crowded house becomes home for ALS victim"
A family of eight returns to a renovated home with much-needed space.
REACH THE FULL STORY!
Wednesday, March 26, 2008
"Walk To Defeat ALS"
Nothing is easy anymore for 43-year old Maarten Jans. Three years ago he was diagnosed with ALS, also known as Lou Gehrig's Disease.
READ THE FULL STORY HERE!
Monday, March 24, 2008
"Tim Tebow Helps Local Family"
Builder's Care has teamed up with the University of Florida Gators to help a local man live out a dream.
READ THE FULL STORY HERE!
Wednesday, March 19, 2008
"Family In Need Gets A House Indeed!"
Kenny and Karen Goodall watched Wednesday as dozens of constructions workers started stripping their home, renovating it, and expanding it.
READ THE FULL STORY HERE!
Wednesday, March 19, 2008
"Family In Need Gets Helping Hand From Builders Care"
A local charity on Wednesday broke ground in an effort to lend a helping hand to a St. Johns County family of eight that has been dealing with some difficult times.
READ THE FULL STORY HERE!
Monday, March 17, 2008
"A Loving home, a helpful hand"
In a still-rural patch of St. Johns County, Kenny and Karen Goodall are getting a bigger house to hold the love of a large family.
READ THE FULL STORY HERE!
Monday, March 3, 2008
"ALS Takes Life Of State Attorney Ober's Mother"
Hillsborough County State Attorney Mark Ober's mother, who had been diagnosed with amyotrophic lateral sclerosis, died Saturday.
READ THE FULL STORY HERE!
Wednesday, February 20, 2008
"Walk to Defeat ALS"
The Florida chapter of The ALS Association is raising money to fight Lou Gehrig's disease.
Sunday, August 5, 2007
READ THE FULL STORY HERE!
|
The ALS Association Florida Chapter
