Resource Support Groups
We understand that dealing with ALS is physically, emotionally and financially devastating for the person diagnosed and their family. Resource Support Groups provide a caring, supportive, open environment for people to gather, connect, and talk with one another. These groups are open to persons living with ALS, their families, caregivers and friends, and are located around the state to provide opportunities to learn more about living with the disease from others who understand the challenges, and to help establish a network of sustained support. A Chapter Regional Care Manager facilitates each group and will have speakers on relevant topics combined with time for attendees to discuss and share information and provide support to one another.
If you are attending a group for the first time, please RSVP to the facilitator. *PLEASE NOTE: Times and locations occasionally change so please check our website prior to each meeting.
Jacksonville - 1st Wed., 2:00 - 4:00pm | Vitas Healthcare | 7406 Fullerton Street | Suite 105 | Jacksonville, FL 32256 | Sabela Miralles
Volusia/Flagler - 2nd Wed., 1:00 - 3:00pm | Bishop’s Glen Retirement Community (The Florida Room) | 900 LPGA Blvd. | Holly Hill, Florida 32117 | Marixa Salgado
Panhandle/Tallahassee - 2nd Tues., 12:00ET, 11:00CT | Phone Group | Judie Benwick
Orlando - 1st Wed., 1:00 - 3:00pm | Whole Foods | 8003 Turkey Lake Road | Orlando, FL 32819 | Marixa Salgado
Brevard - 3rd Wed., 1:00 - 3:00pm | 4450 W. Eau Gallie Boulevard #280 | Melbourne, FL 32934 | Marixa Salgado
The Villages - 4th Wed., 1:00 - 3:00pm | Hibiscus Center | 1740 Bailey Trail | The Villages, FL 32162 | Marixa Salgado - PLEASE NOTE: The following changes to this group due to the holidays: Wednesday, November 22 will be moved to Wednesday, November 29th and the December meeting is canceled.
Tampa - 4th Sat., 2:00 - 4:00pm | USF Morsani Health Center | 13330 Laurel Dr. | Tampa, FL 33612 | Heran Sisay - PLEASE NOTE: The Tampa group will be meeting on November 18 instead of November 25 due to the Thanksgiving Holiday (no changes in time and location). Our December meeting will be canceled due to the holidays.
Pinellas - 4th Mon., 1:30 - 3:30pm | Carillon Bay Care Center | 900 Carillon Pkwy | St. Petersburg, FL 33716 | Heran Sisay - PLEASE NOTE: Our December meeting will be canceled due to the holidays.
Sarasota/Bradenton - 2nd Tue., 12:30 pm – 2:30 pm | Lakewood Ranch Med Ctr. |8330 Lakewood Ranch Blvd. | Bradenton, FL 34202 | Patti Stanco- PLEASE NOTE: The remaining meetings for 2017 have been rescheduled and will be held on Tue. NOV. 7 and on Mon. DEC. 4 from 12:30 pm – 2:30 pm at the Lakewood Ranch Medical Center. We will not meet on the 2nd Tuesday of the month (Tue. Nov. 14 and Tue. Dec. 12) due to a schedule conflict with the conference room. ***Beginning January 2018 the regular meeting date and time will change from the 2nd Tuesday, 12:30 pm – 2:30 pm to the 2nd Wednesday of the month, 1:00 pm – 3:00 pm.*** Please contact Patti Stanco if you have any questions.
North Port - 4th Weds., 1:00 - 3:00pm | Public Library | 13800 Tamiami Trail | North Port, FL 34287 | Patti Stanco PLEASE NOTE: The remaining meetings for 2017 will be held on Wed. OCT. 25th and Wed. DEC. 13th from 1-3 pm at the North Port library. The group will not meet on Wed. Nov. 22nd or Wed. Dec. 27th due to the holidays. Please contact Patti Stanco if you have any questions.
Fort Myers - 3rd Wed., 1:00 - 3:00pm | The First Church of the Nazarene | 13545 American Colony Blvd. | Fort Myers, FL 33912 | Patti Stanco
Naples - 1st Weds., 1:00 - 3:00pm | St. John the Evangelist Church Library | 625 111th Ave. N. | Naples, FL 34108 | Patti Stanco
Martin - 1st Tues., 3:00 - 5:00pm | Martin Memorial Cancer Center | 501 E. Osceola St. | Stuart, FL 34995 |2nd Floor Mtg. Room | Jessica Bianchi
Palm Beach - 3rd Tues., 1:30 - 3:30pm | Children’s Services Council Palm Beach County | 2300 High Ridge Rd. | Boynton Beach, FL 33426 | Jessica Bianchi
Broward - 2nd Tues., 12:30 - 2:30 pm | The Weston Branch Library | 4205 Bonaventure Blvd. | Conference Room | Weston, FL 33332 | Jessica Bianchi
Telephone Groups (PLEASE NOTE: Our telephone resource support groups have limited capacity. Please reach out to the Regional Care Manager running the group for information prior to each meeting.)
Central Florida - 2nd Wed., 12pm ET | “Empower Hour” Phone Group| Judie Benwick & Heran Sisay| email@example.com & firstname.lastname@example.org| 813.637.9000 x112 & x103
Statewide - 3rd Tues., 2pm ET, 1pm CT | “Caregiver Experience” Phone Group | Judie Benwick | email@example.com | 813.637.9000 x112
Panhandle - 2nd Tues., 12pm ET, 11am CT | Phone Group | Judie Benwick | firstname.lastname@example.org | 813.637.9000 x112
Miami-Dade - 1st Thurs., 1:00 - 3:00pm | Camila Arizaga | email@example.com | 813.637.9000 x116
Spanish (Statewide) - 3rd Thurs., 1:00pm ET | Spanish Speaking Phone Group | Camila Arizaga | firstname.lastname@example.org | 813.637.9000 x116