Ice Bucket Challenge Progress

 

Welcome to HOPE and HELP presented by the Florida Chapter.  Through our Symposiums and Webinar series, we will continue to communicate more up-to-date information about what is happening in the ALS community.  We want to educate everyone about the devastation Lou Gehrig’s Disease creates for its victims  - physically, emotionally, and financially - because the more the story is heard, the better chance we will have to find a treatment and a cure.

As horrific as this disease is, we have HOPE that clinical trials and research will lead to ways to prevent, treat, and cure ALS.  And we HELP patients living with the disease through the variety of programs and services that we provide.

Our goal is to communicate information that provides HOPE.  Hope that we can create more awareness about the disease and the need for a cure and treatments.  Hope that awareness will lead to funding for the important research happening right here in Florida.  And hope that someday - and sooner than later - Lou Gehrig’s Disease will not be a death sentence.

We will continue our efforts to create awareness and introduce more and more people to our mission every day. 

 


 

2018 Hope and Help Symposium Presentations

If you were unable to attend this year's Hope and Help Symposium in Orlando, here are the presentations for the day we have permission to share:

ALS Research Progress: Moving Toward Effective Treatments and a Cure

Jill Yersak, Director, Mission Strategy, The ALS Association

Advocacy: Policy Priorities & the Power of Sharing Your Story

Patti Stanco, Regional Program Manager and Director of Advocacy, The ALS Association Florida Chapter

Introduction Video to PatientsLikeMe

This is Digital Me - Uniting to Find the Answers Inside Us

James Murray, Director of Strategic Partnerships, PatientsLikeMe

Impact of the National ALS Registry: Learn How You Can Join the Fight Against ALS

Paul Mehta, MD, Principal Investigator, National ALS Registry

ALS 101: Where to Begin, What to Do

Camila Arizaga, Regional Program Manager, The ALS Association Florida Chapter

 

If you have any questions, please contact your Regional Program Manager HERE.

We will soon be sharing updates about next year's Symposium so please continue to check back or follow us on Facebook at @ALSFlorida!

 


 

Webinar: Communication Solutions for People Living with ALS

This webinar will focus on the newest technologies and products from Tobii Dynavox, and how these can assist people living with ALS with their current and future communication needs, along with insurance/funding options.  With the continuing advances in technology, keeping updated on these technologies allows people living with ALS and their families to continue to connect with others and increase access to daily life routines.

If you missed the webinar on December 11th, you can listen to the recording by clicking the link below:

LISTEN TO THE RECORDING HERE

Presented by Tobii Dynavox: 

Patrick Brune, M.S. CCC/SLP, Senior Training and Application Specialist & Chris Kovach – Regional Sales Consultant NE Florida

 


 

CLICK HERE to participate in the latest Research Webinar or to view previously recorded Webinars from the Florida Chapter.

CLICK HERE to view information and content from our Inaugural Hope and Help Symposium in Orlando, FL - February 21, 2015

CLICK HERE to view information and content from our Second Hope and Help Symposium in Jacksonville, FL - October 17, 2015