Ice Bucket Challenge Progress


Chapter Highlights

Team Judy




Get your teammates together and grab your gear, it’s time for all of you All-Stars to get your game on!  Please join us at one our statewide Walk to Defeat ALS events this spring!  Form a team, invite your family, friends, co-workers, and help The ALS Association Florida Chapter fight Lou Gehrig’s Disease.  Register Today!


2018 Florida Spring Walk Dates:

SARASOTA - March 3rd - Phillippi Estate Park, Sarasota

GREATER TAMPA BAY - March 10th - Elva Rouse Park, St. Petersburg

PALM BEACH - March 17th - Palm Beach Outlet Mall, West Palm Beach

CENTRAL FLORIDA - March 24th - Lake Eola, Orlando

JACKSONVILLE - April 7th - Seven Bridges, Jacksonville

BROWARD - April 14th - Vista View Park, Davie

Start a team or sign up as an individual today! 

CLICK HERE to register for a walk near you today!

For more information, call 888.257.1717 or email us at


Share your experience with us on social media this year using #WalktoDefeatALS

Tag us on Facebook, Twitter or Instagram @ALSFlorida


The National ALS Registry and The National Biorepository Program: 

 One Man's Perspective Living With ALS

My Experience With ALS (So Far)

Written By: Bill King

Bill KingAfter being seasonal Florida residents for over a decade, in December 2016 my wife, Rhonda, and I became full-time residents. I continued to work, which involved traveling back to Connecticut one week per month.

In the late spring of 2017, I noticed that my speech wasn’t as crisp as it had been, with some slurring of words. I also was having difficulty swallowing and chewing (it was taking me twice as long to eat lunch as my work colleagues).

Over the next few months, Rhonda and I visited several different medical specialists in search of an answer. We also spent hours with “Dr. Google.” Finally, we made an appointment at the Mayo Clinic in Jacksonville to meet with a rheumatologist and a neurologist. On October 31 (Halloween), I was given the diagnosis of bulbar onset ALS. Life hasn’t been the same since. However, the outpouring of support from friends and relatives has been unbelievable. That support has been critical to allow Rhonda and me to have some semblance of normalcy in our lives. I’m fortunate to still be able to walk (even play a little golf) even though I don’t have the energy and stamina I used to. My diet has changed to mostly soft foods since chewing is difficult. The biggest change has been my voice, as my speech is now largely unintelligible.

The Mayo neurologist mentioned that there was an ALS clinic in Fort Myers, so that was our first stop when we arrived back home. The friendliness and support of the people we met at the Lee Health ALS Clinic – without an appointment – was wonderful.
Unfortunately, it is unlikely that a cure for ALS will be discovered in time to help me. But, it seemed that there might be some ways I could provide some hope to future generations. I signed up at the National ALS Registry and completed their risk factor questionnaire. I also looked into clinical trails involving stem cell research. But I did not meet the qualifications for any because of restrictions on age, medications, or they were too far from home. 

In January 2018, I was contacted by the National ALS Biorepository. This organization was reaching out to people who had enrolled in the National ALS Registry. They were looking for volunteers to submit blood and urine samples which would be used for future research on ALS. I agreed, and am happy I did. The entire process was simple and required no effort on my part. We set a time for a medical professional to come to my house to collect the samples. The organization was very flexible, agreeing to re-schedule when a conflict arose in my schedule. The in-home visit took 15 minutes as the technician drew 5 vials of blood and collected my first urine of the morning.

Based on my experience, I would encourage anyone who is physically able to participate in the National Biorepository Program if you are contacted, or reach out to your local ALS chapter to find out if they can help you participate. Additionally, we should keep an eye open for clinical trials that might help find a cure for this disease.

The Florida Chapter would like to thank Bill and his wife Rhonda for sharing their story with us.

HHS Website Hero 2018

Join us for a day of informative demonstration and sessions for people living with ALS, caregivers, healthcare professionals, and supporters of the ALS community.  This unique event has something for everyone including numerous distinguished keynote speakers, a vendor fair, plenty of opportunities to "Ask the Experts," and a luncheon featuring guest speaker Richard S. Bedlack Jr., MD, PhD, MS, Neurologist from Duke Health.

We hope to see you there! 

Rosen Centre Hotel  |  9840 International Drive  |  Orlando, FL 32819

Saturday, September 22, 2018  |  8:00AM - 5:00PM

Register Today Button

Presented By:

Patients Like Me

PatientsLikeMe is world’s largest personalized health network helping 11,000+ ALS members discover new treatments, connect with others & take action to improve their outcomes. We’re embarking on a new approach to science that leverages the most advanced scientific resources available to learn more about the nature of disease. Learn more at

Did You Know You Can Support The Florida Chapter Every Time You Shop on Amazon?

That's right!  The ALS Association Florida Chapter is a part of the AmazonSmile network.  It's easy.  AmazonSmile is a website operated by Amazon that lets customers enjoy the same wide selection of products, low prices, and convenient shopping features as on The difference is that when customers shop on AmazonSmile, the AmazonSmile Foundation will donate 0.5% of the price of eligible purchases to the charitable organizations selected by customers.  It's that simple!  And it's not just during the holidays, it's ALL YEAR LONG!

The next time you shop on, use the link below and the AmazonSmile Foundation will donate to 
The ALS Association Florida Chapter!

Durable Medical Equipment

Did You Know You Can Donate Equipment

to the Florida Chapter?

The ALS Association Florida Chapter greatly appreciates donations of durable medical equipment (DME), respiratory equipment, and communication devices for use in our Equipment Loan Program. We understand how expensive it is to care for a person living with ALS, and the importance of the equipment needed to provide the best possible quality of life.   

We offer temporary loaner equipment, including speech generating devices, to Florida residents with a verified diagnosis of ALS who are uninsured, underinsured, who cannot access their insurance (while in a nursing home or hospice) or who are waiting for insurance approval. 

CLICK HERE for more information about the types of equipment we are able to accept.

For equipment donations please contact our Care Services Department at 888-257-1717, ext. 118

The Florida Chapter will provide an acknowledgment letter to the donor for tax purposes once the donation is picked up by the DME companies that store and maintain our equipment throughout the state, Ability Medical Supply and NuMotion.     

Testimonial from a person living with ALS: “This chair that I have made life so much easier for me. The slide board, it's just made a whole different difference.  I’m able to go out in my yard. I'm able to not use the Hoyer lift, just things are so much easier making my life so much easier and so much easier on my wife. I don't know how I can put into words how much I appreciate all the help you guys have given me. Thank you. Thank you. Thank you. Thank you.“


Ability Logo HHS Numotion Logo

Ability Medical Supply and NuMotion are the Official Equipment Loan Program Partners of The ALS Association Florida Chapter.  They can assist you with all of your equipment needs.


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