ALS Ice Bucket Challenge Progress

 

Chapter Highlights

2019 HHS Website Hero

Register TODAY for Our 2019 HOPE and HELP Symposium!

Join us for a day of informative demonstrations and sessions for people living with ALS, caregivers, healthcare professionals, and supporters of the ALS community.  This unique event has something for everyone including numerous distinguished keynote speakers, a hands-on equipment "learning lab", a vendor fair, plenty of opportunities to "Ask the Experts," and a luncheon featuring guest speakers Dr. Merit Cudkowicz, Director of the Sean M. Healey & AMG Center for ALS & Chief of Neurology at Mass General and Richard S. Bedlack Jr., MD, PhD, MS, Neurologist from Duke Health.

Rosen Shingle Creek

9939 Universal Blvd.  |  Orlando, Florida 32819

Saturday, September 14, 2019  |  8:00AM - 5:00PM


Register Today Button

 

Questions?  Please contact the Florida Chapter at 888.257.1717 or email is at info@alsafl.org.

Follow us on Facebook at @ALSFlorida for event updates!


 

 

Hurricane 2018

Hurricane Season is Right Around the Corner!

June first marks the beginning of Hurricane season here in Florida, are you prepared?  Emergencies and disasters can strike quickly and without warning, forcing people to leave or be confined in their home. For the thousands of Americans living with ALS, emergencies such as fires, floods and acts of nature present a real challenge. We recognize how important it is that people living with ALS and their family members have the resources they need to make plans to protect themselves in the event of a disaster. 

We've assembled information and resources to help you and your family plan and prepare for this hurricane season before it arrives.
Make the conscious decision to be proactive and be ready.  It takes work, but it is worth it!  The more you do, the more confident you will be that you can protect yourself when the time comes.  Make a plan.

CLICK HERE to find critical resources in your local area.


 

Walk Landing Page Hero 2019

The ALS Association’s premier event, our Walk to Defeat ALS® is an outlet for communities across the nation to demonstrate their concern for and the urgent need to find the cure for ALS while providing the best care for those who are currently battling the disease.

What began more than 15 years ago as a grassroots effort to increase awareness has now turned into a National Signature Event that the entire ALS community rallies behind, growing the number of teams and participants each year.

Whether reinvigorated by the Ice Bucket Challenge 2014 or new and concerned about our cause, over 150,000 ALS supporters nationwide participated in local Walks this year. It was incredible to feel your support, as Walks across the country broke fundraising and attendance records, and enthusiasm was off the charts! 

Help us keep the momentum going!

TALLAHASSEE | Cascades Park | Tallahassee, FL | Saturday, October 19, 2019 - PARTICIPATE TODAY!

MIAMI-DADE | Maurice Ferre’ Park | Miami, FL | Saturday, October 26, 2019 - PARTICIPATE TODAY!

ST. AUGUSTINE | Ripley's Believe It Or Not | St. Augustine, FL | Saturday, November 16, 2019 - PARTICIPATE TODAY!

 

Start a team or sign up as an individual today! 

CLICK HERE to register for a walk near you today!

For more information, call 888.257.1717 or email us at walk@alsafl.org.

 

Share your experience with us on social media this year using #WalktoDefeatALS

Tag us on Facebook, Twitter or Instagram @ALSFlorida

 


 

 

Rory and Dawn at Ride

 

2019 RIDE to Defeat ALS Registration is NOW Open!

The Ride to Defeat ALS is a one-day endurance event designed to appeal to every level of rider. We offer the Metric Century ride (approx. 62 miles), a 25 mile ride, and a 10 mile ride. You'll experience all of the beautiful scenery and challenging terrain Crews Lake Wilderness Park and the Suncoast Trail have to offer!

Every participant can count on support from start to finish with rest stops, SAG vehicles, and the safety team.  Upon completing the tour, riders are welcomed back by cheering crowds and finish line festivities that include entertainment, and a healthy lunch.

 

Ride to Defeat ALS

November 2, 2019

Crews Lake Wilderness Park, Spring Hill, FL

 

Register Today Button

 

Test your strength. Push your limits. FIGHT ALS.

Grab your friends and join us for this opportunity to be a part of

Team Challenge ALS as we challenge ALS at the highest level.

 

Questions?  Contact Kate Sanstrom at ksanstrom@alsafl.org or call 888.257.1717 ext 115.


 

FL-2015-about-us-scholarship.jpg

Scholarship Opportunity Available Through the Florida Chapter!

The Rick and Sherry Murray Medical Futures Scholarship is for students who have or have had a spouse, parent, or grandparent diagnosed with ALS, also known as Lou Gehrig’s Disease, and who want to pursue a degree in the medical profession as a result of their experience.  Applicants must be:

 - The spouse, child or grandchild of a person who has been diagnosed with ALS. (Families of every tradition will be considered).

 - A legal resident of Florida.

 - Currently majoring in any medically-related degree or attending any medically-related certification program.

 - Any age of student may apply - scholarships are not restricted to graduating high school seniors, high school graduates or current undergraduates.

 - Applicants must attend or be accepted to school full-time (as defined by the educational institution) at an accredited two-year or four-year college or university, or vocational-technical school located in the U.S.

All interested students must complete an application and mail it along with a current, complete official transcript of grades (Grade reports are not acceptable. Official transcripts must display student name, school name, degree program, grade and credit hours earned for each course, and term in which each course was taken.), a 500-word essay describing how the student’s experience with ALS has impacted him/her and his/her decision to enter the medical field, and two (2) letters of recommendation. Other requirements are listed on the application.

2019 Scholarship Information

2019 Scholarship Application

APPLICATION DEADLINE: JULY 12, 2019

 

If you have questions or would like more information, please contact

Gabby Harrison: gharrison@alsafl.org or call 888.257.1717 ext.101

PLEASE NOTE:  To be considered, ALL completed applications MUST BE MAILED to 3242 Parkside Center Circle, Tampa, FL, 33619.

 


 

Amazon Smile Fathers Day

Did You Know You Can Support The Florida Chapter Every

TimeYou Shop on Amazon?

That's right!  The ALS Association Florida Chapter is a part of the AmazonSmile network.  It's easy.  AmazonSmile is a website operated by Amazon that lets customers enjoy the same wide selection of products, low prices, and convenient shopping features as on Amazon.com. The difference is that when customers shop on AmazonSmile, the AmazonSmile Foundation will donate 0.5% of the price of eligible purchases to the charitable organizations selected by customers.  It's that simple!  


The next time you shop on Amazon.com, use the link below and the AmazonSmile Foundation will donate to 
The ALS Association Florida Chapter!

Durable Medical Equipment

Did You Know You Can Donate Equipment

to the Florida Chapter?

 

 

The ALS Association Florida Chapter greatly appreciates donations of durable medical equipment (DME), respiratory equipment, and communication devices for use in our Equipment Loan Program. We understand how expensive it is to care for a person living with ALS, and the importance of the equipment needed to provide the best possible quality of life.   

We offer temporary loaner equipment, including speech generating devices, to Florida residents with a verified diagnosis of ALS who are uninsured, underinsured, who cannot access their insurance (while in a nursing home or hospice) or who are waiting for insurance approval. 

CLICK HERE for more information about the types of equipment we are able to accept.

For equipment donations please contact our Care Services Department at 888-257-1717, ext. 118

 

 

The Florida Chapter will provide an acknowledgment letter to the donor for tax purposes once the donation is picked up by the DME companies that store and maintain our equipment throughout the state, Ability Medical Supply and NuMotion.     

Testimonial from a person living with ALS: “This chair that I have made life so much easier for me. The slide board, it's just made a whole different difference.  I’m able to go out in my yard. I'm able to not use the Hoyer lift, just things are so much easier making my life so much easier and so much easier on my wife. I don't know how I can put into words how much I appreciate all the help you guys have given me. Thank you. Thank you. Thank you. Thank you.“

Ability Logo HHS Numotion Logo

Ability Medical Supply and NuMotion are the Official Equipment Loan Program Partners of The ALS Association Florida Chapter.  They can assist you with all of your equipment needs.


 

Connect with Us on Social Media:

 

Facebook icon

Twitter icon

Instagram Logo