ALS Ice Bucket Challenge Progress

 

Chapter Highlights

Caregiver Month 2019

November is National Family Caregivers Month!

In recognition of National Family Caregivers Month, we want to take a special moment to honor those incredible caregivers in the ALS community.  You spend tireless days and nights giving up many facets of your own life to provide your loved one with care that gives so much more than just sustenance.  You provide love, safety, and dignity to your loved ones, which are gifts without price or pretty bows.  Please take a minute and recognize for yourself, as we recognize with you, the incredible sacrifices you make and efforts you provide.  And then think about ways you can take care of yourself.

It is often times repeated to Caregivers that they need to take care of themselves.  This is such important advice, and at times so very hard to do.  Where do we find the time?  Where do we find the money?  How can we possibly take a break?  Yet, if we don’t take care of ourselves, we run out of resources to continue to provide the care.  Here is a list of 10 things that don’t cost a penny, and will only take a minute or two, yet are life affirming and energy regenerating: 

- BREATHE!  - Remember to breathe, deep, belly filling, chest expanding breaths.  Breathing becomes shallow at times of stress, and oxygen is the number one anxiety and stress reducer.  Take a second and just take a few deep breaths.

- Smile - Research shows that just physically smiling will help change the brain chemistry and make you feel better.

- Drink water - Drinking clean, room temperature water doesn’t have to waste any of your energy warming it up before it can be beneficial, and hydration is so important to our own bodies!

- Take a nature break - Walking in, looking at, or even thinking about a fresh spring breeze, a beautiful blue sky, a sunrise full of oranges and yellows, calms our nerves and relieves mental fatigue.

- Nourish your body - Eat healthful food in a peaceful place, and chew well.

- Take a sniff - Take a moment to give fresh laundry a deep whiff, light a scented candle, surround yourself with smells that envelop you in comfort.  Our sense of smell has the longest “history” of all of our senses and can provide great calm and nurturing.

- Connect with people – Whether it’s for a minute or hours, spending time with positive, loving people helps reduce stress and improves how you feel overall.

- Music - Listening to music brings about a sense of energy related to the tempo, and the thoughts the music stimulates.  If you need some energy, put on some fast paced music you know all the words to and sing along!  If you need some calming, put on some soothing jazz, or slower tempo easy listening.  

- Take notice - When we are busy, we often forget to simply notice what is around us.  What sounds do we hear, what smells do we smell, what colors do we see.

- Touch - Everyone needs physical touch.  You are probably providing this to your loved one, and make sure you allow yourself positive touch.  A hug from someone, notice a gentle touch, and surround yourself with soft textures that feel good.

Try one or all, and be mindful that you are important too, as you continue to give of yourself so selflessly to your loved one.  And know that during the month of November, and always, we are thinking about the wonderful caregiver you are and honoring your efforts.  Thank you for all that you do every day!

For more Caregiver Resources, CLICK HERE.


 

Walk Landing Page Hero 2019

The ALS Association’s premier event, our Walk to Defeat ALS® is an outlet for communities across the nation to demonstrate their concern for and the urgent need to find the cure for ALS while providing the best care for those who are currently battling the disease.

What began more than 15 years ago as a grassroots effort to increase awareness has now turned into a National Signature Event that the entire ALS community rallies behind, growing the number of teams and participants each year.

Whether reinvigorated by the Ice Bucket Challenge 2014 or new and concerned about our cause, over 150,000 ALS supporters nationwide participated in local Walks this year. It was incredible to feel your support, as Walks across the country broke fundraising and attendance records, and enthusiasm was off the charts! 

Help us keep the momentum going!

 

St. Augustine | Ripley's Believe It Or Not | St. Augustine, FL | Saturday, November 16, 2019 - PARTICIPATE TODAY!

Tallahassee | Cascades Park | Tallahassee, FL | Saturday, December 14, 2019 - PARTICIPATE TODAY!

Southwest Florida Walk to Defeat ALS | Estero Community Park | Estero, FL | Saturday, February 1, 2020 - PARTICIPATE TODAY!

Sarasota Walk to Defeat ALS | Phillippi Estate Park | Sarasota, FL |  Saturday, February 22, 2020 - PARTICIPATE TODAY!

Greater Tampa Bay Walk to Defeat ALS | Elva Rouse Park | St. Petersburg, FL | Saturday, March 7, 2020 - PARTICIPATE TODAY!

Palm Beach County Walk to Defeat ALS | Dreher South Park | West Palm Beach, FL | Saturday, March 14, 2020 - PARTICIPATE TODAY!

Central Florida Walk to Defeat ALS | Lake Eola | Orlando, FL | Saturday, March 21, 2020 - PARTICIPATE TODAY!

Broward Walk to Defeat ALS | Vista View Park | Davie, FL | Saturday, March 28, 2020 - PARTICIPATE TODAY!

Jacksonville Walk to Defeat ALS | Seven Bridges-Tinseltown | Jacksonville, FL | Saturday, April 4, 2020 - PARTICIPATE TODAY!

 

Start a team or sign up as an individual today! 

CLICK HERE to register for a walk near you today!

For more information, call 888.257.1717 or email us at walk@alsafl.org.

 

Share your experience with us on social media this year using #WalktoDefeatALS

Tag us on Facebook, Twitter or Instagram @ALSFlorida


 

Battle of the Bands 2019

For more information, contact browardbattleofthebandsALS@gmail.com.


Support Group Web Email 2019

ALS Resource Connections

We understand that dealing with ALS is physically, emotionally and financially devastating for the person diagnosed and their family.  ALS Resource Connections groups provide a caring, supportive, open environment for people to gather, connect, and talk with one another.  These groups are open to people living with ALS, their families, caregivers and friends, and are located around the state to provide opportunities to learn more about living with the disease from others who understand the challenges, and to help establish a network of valuable resources and sustained support.  

A Chapter Regional Program Manager facilitates each meeting and will have speakers on relevant topics combined with time for attendees to discuss and share information and provide feedback to one another.

To learn more about a group near you, CLICK HERE.


Amazon Smile holiday teaser

Did You Know You Can Support The Florida Chapter Every Time
You Shop on Amazon This Holiday Season?
  
That's right!  The ALS Association Florida Chapter is a part of the AmazonSmile network.  It's easy.  AmazonSmile is a website operated by Amazon that lets customers enjoy the same wide selection of products, low prices, and convenient shopping features as on Amazon.com. The difference is that when customers shop on AmazonSmile, the AmazonSmile Foundation will donate 0.5% of the price of eligible purchases to the charitable organizations selected by customers.  It's that simple!  And it's not just during the holidays, it's ALL YEAR LONG!

 

The next time you shop on Amazon.com, use the link below and the AmazonSmile Foundation will donate to 
The ALS Association Florida Chapter!

 

Durable Medical Equipment

Did You Know You Can Donate Equipment

to the Florida Chapter?

 

 

The ALS Association Florida Chapter greatly appreciates donations of durable medical equipment (DME), respiratory equipment, and communication devices for use in our Equipment Loan Program. We understand how expensive it is to care for a person living with ALS, and the importance of the equipment needed to provide the best possible quality of life.   

We offer temporary loaner equipment, including speech generating devices, to Florida residents with a verified diagnosis of ALS who are uninsured, underinsured, who cannot access their insurance (while in a nursing home or hospice) or who are waiting for insurance approval. 

CLICK HERE for more information about the types of equipment we are able to accept.

For equipment donations please contact our Care Services Department at 888-257-1717, ext. 118

 

 

The Florida Chapter will provide an acknowledgment letter to the donor for tax purposes once the donation is picked up by the DME companies that store and maintain our equipment throughout the state, Ability Medical Supply and NuMotion.     

Testimonial from a person living with ALS: “This chair that I have made life so much easier for me. The slide board, it's just made a whole different difference.  I’m able to go out in my yard. I'm able to not use the Hoyer lift, just things are so much easier making my life so much easier and so much easier on my wife. I don't know how I can put into words how much I appreciate all the help you guys have given me. Thank you. Thank you. Thank you. Thank you.“

Ability Logo HHS Numotion Logo

Ability Medical Supply and NuMotion are the Official Equipment Loan Program Partners of The ALS Association Florida Chapter.  They can assist you with all of your equipment needs.


 

Connect with Us on Social Media:

 

Facebook icon

Twitter icon

Instagram Logo