ALS Ice Bucket Challenge Progress

 

Chapter Highlights

 

Florida Budget Includes Critical Funding for ALS Patients

Big News - News Delivery Boy

Gov. Ron DeSantis approved $800,000 in funding for the Bitner Plante ALS Initiative of Florida in the 2020-2021 budget released on June 29, 2020. The Initiative provides support for ALS patients seeking treatment at the multidisciplinary clinics located at Mayo Clinic, Jacksonville; University of South Florida, Tampa; University of Miami, Miami; and UF Health Jacksonville. 

“Rep. Travis Cummings, Sen. Aaron Bean, Rep. Holly Raschein, Rep. MaryLynn Magar and Sen. Rob Bradley advocated for the Bitner Plante Initiative throughout the legislative session,” said Carson. “Their leadership and support means so much to the ALS community.”


 

Support Group Web Email 2019

ALS Resource Connections

We understand that dealing with ALS is physically, emotionally and financially devastating for the person diagnosed and their family.  ALS Resource Connections groups provide a caring, supportive, open environment for people to gather, connect, and talk with one another.  These groups are open to people living with ALS, their families, caregivers and friends, and are located around the state to provide opportunities to learn more about living with the disease from others who understand the challenges, and to help establish a network of valuable resources and sustained support.  

A Chapter Regional Program Manager facilitates each meeting and will have speakers on relevant topics combined with time for attendees to discuss and share information and provide feedback to one another. 

To learn more about a group near you, CLICK HERE.


AmazonSmile

Did You Know You Can Support The Florida Chapter Every Time
You Shop on Amazon?
  
 
That's right!  The ALS Association Florida Chapter is a part of the AmazonSmile network.  It's easy.  AmazonSmile is a website operated by Amazon that lets customers enjoy the same wide selection of products, low prices, and convenient shopping features as on Amazon.com. The difference is that when customers shop on AmazonSmile, the AmazonSmile Foundation will donate 0.5% of the price of eligible purchases to the charitable organizations selected by customers.  It's that simple! 

 

The next time you shop on Amazon.com, use the link below and the AmazonSmile Foundation will donate to The ALS Association Florida Chapter!


Durable Medical Equipment

Did You Know You Can Donate Equipment

to the Florida Chapter?

 

The ALS Association Florida Chapter greatly appreciates donations of durable medical equipment (DME), respiratory equipment, and communication devices for use in our Equipment Loan Program. We understand how expensive it is to care for a person living with ALS, and the importance of the equipment needed to provide the best possible quality of life.   

We offer temporary loaner equipment, including speech generating devices, to Florida residents with a verified diagnosis of ALS who are uninsured, underinsured, who cannot access their insurance (while in a nursing home or hospice) or who are waiting for insurance approval. 

CLICK HERE for more information about the types of equipment we are able to accept.

For equipment donations please contact our Care Services Department at 888-257-1717, ext. 113.

The Florida Chapter will provide an acknowledgment letter to the donor for tax purposes once the donation is picked up by the DME companies that store and maintain our equipment throughout the state, Ability Medical Supply and NuMotion.     

Testimonial from a person living with ALS: “This chair that I have made life so much easier for me. The slide board, it's just made a whole different difference.  I’m able to go out in my yard. I'm able to not use the Hoyer lift, just things are so much easier making my life so much easier and so much easier on my wife. I don't know how I can put into words how much I appreciate all the help you guys have given me. Thank you. Thank you. Thank you. Thank you.“

 

Ability Logo - NEW Numotion Logo

Ability Medical Supply and NuMotion are the Official Equipment Loan Program Partners of The ALS Association Florida Chapter.  They can assist you with all of your equipment needs.


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