REGISTER TODAY FOR A WALK TO DEFEAT ALS® NEAR YOU!
The ALS Association’s premier event, our Walk to Defeat ALS® is an outlet for communities across the nation to demonstrate their concern for and the urgent need to find the cure for ALS while providing the best care for those who are currently battling the disease.
What began more than 15 years ago as a grassroots effort to increase awareness has now turned into a National Signature Event that the entire ALS community rallies behind, growing the number of teams and participants each year.
Whether reinvigorated by the Ice Bucket Challenge 2014 or new and concerned about our cause, over 150,000 ALS supporters nationwide participated in local Walks this year. It was incredible to feel your support, as Walks across the country broke fundraising and attendance records, and enthusiasm was off the charts!
Help us keep the momentum going in 2019!
Southwest Florida - February 23, 2019 - Ft. Myers, FL
Sarasota - March 2, 2019 - Sarasota, FL
Greater Tampa Bay - March 9, 2019 - St. Petersburg, FL
Palm Beach County - March 16, 2019 - West Palm Beach, FL
Central Florida - March 23, 2019 - Orlando, FL
Jacksonville - March 30, 2019 - Jacksonville, FL
Broward County - April 6, 2019 - Davie, FL
Start a team or sign up as an individual today!
CLICK HERE to register for a walk near you today!
For more information, call 888.257.1717 or email us at firstname.lastname@example.org.
Share your experience with us on social media this year using #WalktoDefeatALS
Tag us on Facebook, Twitter or Instagram @ALSFlorida
Congratulations to the Team at UF Jacksonville Multidisciplinary ALS Center!
The ALS Association, along with The Florida Chapter, welcomed UF Jacksonville Multidisciplinary ALS Center to the nonprofit organization’s Certified Treatment Center of Excellence Program, establishing the ALS Center as meeting the highest levels of established national standards of care in the management of Amyotrophic Lateral Sclerosis (ALS).
ALS is a progressive neurodegenerative disease that affects nerve cells in the brain and the spinal cord. Eventually, people with ALS lose the ability to initiate and control muscle movement, which often leads to total paralysis and death within two to five years of diagnosis. There is currently no cure and no life-prolonging treatments for the disease.
Since 1998, The ALS Association’s national network of Certified Treatment Centers of Excellence has provided evidence-based, multidisciplinary ALS care and services in a supportive atmosphere with an emphasis on hope and quality of life. Each ALS clinic must meet The ALS Association’s clinical care and treatment standards, which are based on the American Academy of Neurology (AAN) Practice Parameters, participate in ALS-related research and successfully complete a comprehensive site review to be certified as a Center of Excellence. Achieving certification through successful completion of the program’s robust clinical and administrative reviews confirms to people living with ALS and their family members the validity and comprehensiveness of the Certified Treatment Center of Excellence’s standards of quality and implementation of best practices.
“The care that people receive here is a model for other parts of the country and I’m proud that we are able to recognize UF Jacksonville for its outstanding multidisciplinary approach to treating people with this devastating disease,” said Gabby Harrison, Director of Programs and Operations for the Florida Chapter.
Research has shown that multidisciplinary care, or, the practice of having physicians and other healthcare professionals collaborate to provide the most comprehensive treatment plan for patients, helps people with ALS have better quality of life - and actually prolongs life in most cases. The Florida Chapter has a long history supporting multidisciplinary care, providing staff liaison and financial support to ensure people living with ALS receive the specialized care necessary to meet their unique needs.
“The UF Health Jacksonville Multidisciplinary ALS Center is proud to be recognized as a Certified Center of Excellence by the ALS Association,” said Medical Director, Dr. Michael Pulley. “This accomplishment is the culmination of years of hard work and dedication by an outstanding team of care providers. Patients of the UF Health Multidisciplinary ALS Center will benefit from this recognition as we strive to improve and take our Center to an even higher level.”
For more information about ALS multidisciplinary care in Florida, CLICK HERE.
SAVE THE DATE! SAVE THE DATE! SAVE THE DATE! SAVE THE DATE!
2019 ALS Awareness Game with the Tampa Bay Rays
Tampa Bay Rays vs. New York Yankees
Sunday, May 12, 2019
TICKETS ON SALE SOON! Visit alsafl.org for more information
or follow us on Facebook @ALSFlorida
SAVE THE DATE! SAVE THE DATE! SSAVE THE DATE! SAVE THE DATE!
2019 HOPE and HELP Symposium
Saturday, September 14, 2019
Rosen Shingle Creek | Orlando, FL
We will soon be sharing updates about REGISTRATION so please continue to check back
or follow us on Facebook at @ALSFlorida!
Did You Know You Can Donate Equipment
to the Florida Chapter?
The ALS Association Florida Chapter greatly appreciates donations of durable medical equipment (DME), respiratory equipment, and communication devices for use in our Equipment Loan Program. We understand how expensive it is to care for a person living with ALS, and the importance of the equipment needed to provide the best possible quality of life.
CLICK HERE for more information about the types of equipment we are able to accept.
For equipment donations please contact our Care Services Department at 888-257-1717, ext. 118
The Florida Chapter will provide an acknowledgment letter to the donor for tax purposes once the donation is picked up by the DME companies that store and maintain our equipment throughout the state, Ability Medical Supply and NuMotion.
Ability Medical Supply and NuMotion are the Official Equipment Loan Program Partners of The ALS Association Florida Chapter. They can assist you with all of your equipment needs.
The National ALS Registry and The National Biorepository Program:
One Man's Perspective Living With ALS
My Experience With ALS (So Far)
Written By: Bill King
The Florida Chapter would like to thank Bill and his wife Rhonda for sharing their story with us.
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