ALS Ice Bucket Challenge Progress

 

Chapter Highlights

Walk 2020 Web Teaser

The ALS Association’s premier event, our Walk to Defeat ALS® is an outlet for communities across the nation to demonstrate their concern for and the urgent need to find the cure for ALS while providing the best care for those who are currently battling the disease.

What began more than 15 years ago as a grassroots effort to increase awareness has now turned into a National Signature Event that the entire ALS community rallies behind, growing the number of teams and participants each year.

Whether reinvigorated by the Ice Bucket Challenge 2014 or new and concerned about our cause, over 150,000 ALS supporters nationwide participated in local Walks this year. It was incredible to feel your support, as Walks across the country broke fundraising and attendance records, and enthusiasm was off the charts!  

We have made the difficult, but necessary decision to suspend our event schedule for eight weeks, per CDC recommendations, until further notice. This includes our Walks to Defeat ALS® in Palm Beach, Central Florida, Broward, Jacksonville, Southwest Florida, Sarasota and Tampa. The health and safety of our ALS community was the main deciding factor as it is our highest priority. Please note that for the Walks, these are not cancellations; each Walk is still up and running. We are asking everyone to continue to build their teams and raise money to support our care services programs in your communities.

If you need help with fundraising ideas during this suspension, please contact your Regional Development Manager. As you are aware, ALS is not a canceled or postponed disease. It is a devastating one that affects our communities each day, and we will not let COVID-19 prevent us from the fight against ALS. Please contact us at (888) 257-1717 if you have any questions or concerns and thank you for patience, understanding and ongoing support. 

Help us keep the momentum going!

Palm Beach County Walk to Defeat ALS | SUSPENDED UNTIL FURTHER NOTICE - PARTICIPATE TODAY!

Central Florida Walk to Defeat ALS | SUSPENDED UNTIL FURTHER NOTICE PARTICIPATE TODAY!

Broward Walk to Defeat ALS | SUSPENDED UNTIL FURTHER NOTICE  - PARTICIPATE TODAY!

Jacksonville Walk to Defeat ALS | SUSPENDED UNTIL FURTHER NOTICEPARTICIPATE TODAY!

Southwest Florida Walk to Defeat ALS | SUSPENDED UNTIL FURTHER NOTICE  - PARTICIPATE TODAY!

 Sarasota Walk to Defeat ALS | SUSPENDED UNTIL FURTHER NOTICE  - PARTICIPATE TODAY!

Greater Tampa Bay Walk to Defeat ALS | SUSPENDED UNTIL FURTHER NOTICE  - PARTICIPATE TODAY!

  

Start a team or sign up as an individual today! 

CLICK HERE to register for a walk near you today!

For more information, call 888.257.1717 or email us at walk@alsafl.org.

 

Share your experience with us on social media this year using #WalktoDefeatALS

Tag us on Facebook, Twitter or Instagram @ALSFlorida.


 

CE396E9B-E93E-41BB-9160-E5A2124D944F.jfif 

 

The Ring of Honor Golf Classic, presented by Ring Power CAT, will be the most fun and memorable time you've ever had on a golf course! This event was established to remember those who we have lost to ALS - and to honor those who, along with their families, are still fighting this devastating disease. This tournament and an auction will bring together community and business leaders from Northeast Florida in an effort to support The ALS Association Florida Chapter and our critical mission to find treatments and a cure for ALS.

Monday, May 11, 2020

Shotgun Start: 10 AM

Slammer & Squire Golf Course | St. Augustine, FL

Sponsorships and tickets are now available here.

Please contact Michelle Decker at MDecker@alsafl.org | 813-637-9000 x130 for more information. 


 

2020 HHS Web Header tile

SAVE THE DATE!  SAVE THE DATE!  SAVE THE DATE!  SAVE THE DATE!

 

Join us for a day of informative demonstrations and sessions for people living with ALS, caregivers, healthcare professionals, and supporters of the ALS community.  This unique event has something for everyone including numerous distinguished keynote speakers, a hands-on equipment“learning lab”, a vendor fair, and plenty of opportunities to “Ask the Experts.” 

Saturday, August 29, 2020

8:00am - 5:00pm

Rosen Shingle Creek | Orlando, FL

Registration will be opening soon, please check back!


 

Support Group Web Email 2019

ALS Resource Connections

We understand that dealing with ALS is physically, emotionally and financially devastating for the person diagnosed and their family.  ALS Resource Connections groups provide a caring, supportive, open environment for people to gather, connect, and talk with one another.  These groups are open to people living with ALS, their families, caregivers and friends, and are located around the state to provide opportunities to learn more about living with the disease from others who understand the challenges, and to help establish a network of valuable resources and sustained support.  

A Chapter Regional Program Manager facilitates each meeting and will have speakers on relevant topics combined with time for attendees to discuss and share information and provide feedback to one another. 

Out of an abundance of caution, the ALS Association Florida Chapter has canceled our in-person support groups until the end of April. We are continuing to evaluate other Chapter events as well as our schedule for May and beyond - and will let you know as soon as our support groups start back up again. Our telephone groups are still operational (see below). Please visit the http://www.alsa.org/ website to stay updated on the ALS Association's response to evolving news surrounding the Coronavirus (COVID-19). Thank you for your understanding! Please contact your local care services representative if you have any questions or concerns.

To learn more about a group near you, CLICK HERE.


AmazonSmile

Did You Know You Can Support The Florida Chapter Every Time
You Shop on Amazon?
  
 
That's right!  The ALS Association Florida Chapter is a part of the AmazonSmile network.  It's easy.  AmazonSmile is a website operated by Amazon that lets customers enjoy the same wide selection of products, low prices, and convenient shopping features as on Amazon.com. The difference is that when customers shop on AmazonSmile, the AmazonSmile Foundation will donate 0.5% of the price of eligible purchases to the charitable organizations selected by customers.  It's that simple! 

 

The next time you shop on Amazon.com, use the link below and the AmazonSmile Foundation will donate to The ALS Association Florida Chapter!


 

Durable Medical Equipment

Did You Know You Can Donate Equipment

to the Florida Chapter?

 

The ALS Association Florida Chapter greatly appreciates donations of durable medical equipment (DME), respiratory equipment, and communication devices for use in our Equipment Loan Program. We understand how expensive it is to care for a person living with ALS, and the importance of the equipment needed to provide the best possible quality of life.   

We offer temporary loaner equipment, including speech generating devices, to Florida residents with a verified diagnosis of ALS who are uninsured, underinsured, who cannot access their insurance (while in a nursing home or hospice) or who are waiting for insurance approval. 

 

 

CLICK HERE for more information about the types of equipment we are able to accept.

For equipment donations please contact our Care Services Department at 888-257-1717, ext. 113. 

The Florida Chapter will provide an acknowledgment letter to the donor for tax purposes once the donation is picked up by the DME companies that store and maintain our equipment throughout the state, Ability Medical Supply and NuMotion.     

Testimonial from a person living with ALS: “This chair that I have made life so much easier for me. The slide board, it's just made a whole different difference.  I’m able to go out in my yard. I'm able to not use the Hoyer lift, just things are so much easier making my life so much easier and so much easier on my wife. I don't know how I can put into words how much I appreciate all the help you guys have given me. Thank you. Thank you. Thank you. Thank you.“

 

Ability Logo HHS Numotion Logo

Ability Medical Supply and NuMotion are the Official Equipment Loan Program Partners of The ALS Association Florida Chapter.  They can assist you with all of your equipment needs.

 


Connect with Us on Social Media:

 

Facebook icon

Twitter icon

Instagram Logo