ALS Ice Bucket Challenge Progress

 

Chapter Highlights

Florida Budget Includes Critical Funding for ALS Patients

Big News - News Delivery Boy

Gov. Ron DeSantis approved $800,000 in funding for the Bitner Plante ALS Initiative of Florida in the 2020-2021 budget released on June 29, 2020. The Initiative provides support for ALS patients seeking treatment at the multidisciplinary clinics located at Mayo Clinic, Jacksonville; University of South Florida, Tampa; University of Miami, Miami; and UF Health Jacksonville. 

“Rep. Travis Cummings, Sen. Aaron Bean, Rep. Holly Raschein, Rep. MaryLynn Magar and Sen. Rob Bradley advocated for the Bitner Plante Initiative throughout the legislative session,” said Carson. “Their leadership and support means so much to the ALS community.”


 Walk Your Way Banner

ALS Walk Your Way is our answer to the keeping everybody safe while still fighting to defeat ALS. We hated having to suspend our spring Walks to Defeat ALS in Broward, Central Florida, Greater Tampa Bay, Jacksonville, Palm Beach, Sarasota and Southwest Florida. To make up for it, we're letting our ALS community choose their 'Walk Your Way' experience. Find out more by participating in your neighborhood below:

-   PARTICIPATE in Broward!

-   PARTICIPATE in Central Florida!

-   PARTICIPATE in Greater Tampa Bay!

-   PARTICIPATE in Jacksonville!

- PARTICIPATE in Palm Beach!

- PARTICIPATE in Sarasota!

-   PARTICIPATE in Southwest Florida!


Lou Gehrig 2020 July 4th

July 4th marks the 81st Anniversary of Lou Gehrig’s retirement from baseball. On Independence Day 1939, Gehrig recited these memorable words:  "Fans, for the past two weeks you have been reading about the bad break I got. Yet today I consider myself the luckiest man on the face of this earth.” 

Gehrig's speech brought national attention to ALS and embodies the bravery and determination of those touched by this awful disease. Just two years after he addressed fans, friends, and family from that field in the Bronx, Gehrig died at the age of 37.


#ALSinthistogether

Share your "ALS in this together" story through the Storyvine app!

 The ALS Association has partnered with Storyvine to capture your experiences and amplify our collective voices through stories. By participating in this project, you can provide a true and authentic voice that not only increases awareness about the impact of ALS, but connects our community, and allows you to advocate for families living with this disease. A step-by-step training guide for making your video can be found here and the registration link can be found here. For any questions, please email our Marketing and Communications Manager, Stephanie Oliva.

Once you're finished, you'll receive a link to a video that you can share with your networks about the impact of ALS and its effect on families. Thank you for all you do to support the ALS community and for being a valuable partner in the fight against ALS. We have always been – and are stronger because we are - #ALSInThisTogether. We look forward to seeing your stories!


  

Walk 2020 Web Teaser

The ALS Association’s premier event, our Walk to Defeat ALS® is an outlet for communities across the nation to demonstrate their concern for and the urgent need to find the cure for ALS while providing the best care for those who are currently battling the disease.

What began more than 15 years ago as a grassroots effort to increase awareness has now turned into a National Signature Event that the entire ALS community rallies behind, growing the number of teams and participants each year.

Whether reinvigorated by the Ice Bucket Challenge 2014 or new and concerned about our cause, over 150,000 ALS supporters nationwide participated in local Walks this year. It was incredible to feel your support, as Walks across the country broke fundraising and attendance records, and enthusiasm was off the charts!  

Help us keep the momentum going!

Tallahassee Walk to Defeat ALS | Saturday, October 17, 2020 | Cascades Park - PARTICIPATE TODAY!

Miami Walk to Defeat ALS | Saturday, November 7, 2020 |  Tropical Park Stadium - PARTICIPATE TODAY! 

Gainesville Walk to Defeat ALS | Friday, November 13, 2020 | Depot Park   - PARTICIPATE TODAY!

St. Augustine Walk to Defeat ALS | Saturday, November 14, 2020 | Ripley's Believe It or Not PARTICIPATE TODAY! 

Start a team or sign up as an individual today! 

CLICK HERE to register for a walk near you today!

For more information, call 888.257.1717 or email us at walk@alsafl.org.

Share your experience with us on social media this year using #WalktoDefeatALS

Tag us on Facebook, Twitter or Instagram @ALSFlorida.


 

2020 HHS Web Info

SAVE THE DATE!  SAVE THE DATE!  SAVE THE DATE!  SAVE THE DATE!

 

We are moving forward with hosting the 7th Annual Hope and Help Symposium as a virtual experience!
It is our goal to safely meet the needs of people living with ALS by delivering the Symposium in a way that can accommodate the current circumstances. Stay tuned as more information on day of event and registration is coming soon!!!

Saturday, August 29, 2020

8:00am - 5:00pm

Registration will be opening soon, please check back!


 

Support Group Web Email 2019

ALS Resource Connections

We understand that dealing with ALS is physically, emotionally and financially devastating for the person diagnosed and their family.  ALS Resource Connections groups provide a caring, supportive, open environment for people to gather, connect, and talk with one another.  These groups are open to people living with ALS, their families, caregivers and friends, and are located around the state to provide opportunities to learn more about living with the disease from others who understand the challenges, and to help establish a network of valuable resources and sustained support.  

A Chapter Regional Program Manager facilitates each meeting and will have speakers on relevant topics combined with time for attendees to discuss and share information and provide feedback to one another. 

To learn more about a group near you, CLICK HERE.


AmazonSmile

Did You Know You Can Support The Florida Chapter Every Time
You Shop on Amazon?
  
 
That's right!  The ALS Association Florida Chapter is a part of the AmazonSmile network.  It's easy.  AmazonSmile is a website operated by Amazon that lets customers enjoy the same wide selection of products, low prices, and convenient shopping features as on Amazon.com. The difference is that when customers shop on AmazonSmile, the AmazonSmile Foundation will donate 0.5% of the price of eligible purchases to the charitable organizations selected by customers.  It's that simple! 

 

The next time you shop on Amazon.com, use the link below and the AmazonSmile Foundation will donate to The ALS Association Florida Chapter!


Durable Medical Equipment

Did You Know You Can Donate Equipment

to the Florida Chapter?

 

The ALS Association Florida Chapter greatly appreciates donations of durable medical equipment (DME), respiratory equipment, and communication devices for use in our Equipment Loan Program. We understand how expensive it is to care for a person living with ALS, and the importance of the equipment needed to provide the best possible quality of life.   

We offer temporary loaner equipment, including speech generating devices, to Florida residents with a verified diagnosis of ALS who are uninsured, underinsured, who cannot access their insurance (while in a nursing home or hospice) or who are waiting for insurance approval. 

CLICK HERE for more information about the types of equipment we are able to accept.

For equipment donations please contact our Care Services Department at 888-257-1717, ext. 113.

The Florida Chapter will provide an acknowledgment letter to the donor for tax purposes once the donation is picked up by the DME companies that store and maintain our equipment throughout the state, Ability Medical Supply and NuMotion.     

Testimonial from a person living with ALS: “This chair that I have made life so much easier for me. The slide board, it's just made a whole different difference.  I’m able to go out in my yard. I'm able to not use the Hoyer lift, just things are so much easier making my life so much easier and so much easier on my wife. I don't know how I can put into words how much I appreciate all the help you guys have given me. Thank you. Thank you. Thank you. Thank you.“

 

Ability Logo - NEW Numotion Logo

Ability Medical Supply and NuMotion are the Official Equipment Loan Program Partners of The ALS Association Florida Chapter.  They can assist you with all of your equipment needs.


Connect with Us on Social Media:

Facebook icon

Twitter icon

Instagram Logo