Gov. Ron DeSantis approved $800,000 in funding for the Bitner Plante ALS Initiative of Florida in the 2020-2021 budget released on June 29, 2020. The Initiative provides support for ALS patients seeking treatment at the multidisciplinary clinics located at Mayo Clinic, Jacksonville; University of South Florida, Tampa; University of Miami, Miami; and UF Health Jacksonville.
“Rep. Travis Cummings, Sen. Aaron Bean, Rep. Holly Raschein, Rep. MaryLynn Magar and Sen. Rob Bradley advocated for the Bitner Plante Initiative throughout the legislative session,” said Carson. “Their leadership and support means so much to the ALS community.”
ALS Resource Connections
We understand that dealing with ALS is physically, emotionally and financially devastating for the person diagnosed and their family. ALS Resource Connections groups provide a caring, supportive, open environment for people to gather, connect, and talk with one another. These groups are open to people living with ALS, their families, caregivers and friends, and are located around the state to provide opportunities to learn more about living with the disease from others who understand the challenges, and to help establish a network of valuable resources and sustained support.
A Chapter Regional Program Manager facilitates each meeting and will have speakers on relevant topics combined with time for attendees to discuss and share information and provide feedback to one another.
To learn more about a group near you, CLICK HERE.
Did You Know You Can Donate Equipment
to the Florida Chapter?
The ALS Association Florida Chapter greatly appreciates donations of durable medical equipment (DME), respiratory equipment, and communication devices for use in our Equipment Loan Program. We understand how expensive it is to care for a person living with ALS, and the importance of the equipment needed to provide the best possible quality of life.
CLICK HERE for more information about the types of equipment we are able to accept.
For equipment donations please contact our Care Services Department at 888-257-1717, ext. 113.
The Florida Chapter will provide an acknowledgment letter to the donor for tax purposes once the donation is picked up by the DME companies that store and maintain our equipment throughout the state, Ability Medical Supply and NuMotion.