Do you know a child who has recently seen someone they love be diagnosed with ALS? Lou Gehrig's Disease affects the entire family. For children, the disease may be hard to understand and difficult to accept. We’re here to help young minds cope with the diagnosis of a loved one.
Through the Kids Kare Program, The ALS Association Florida Chapter educates and supports the children and grandchildren of people living with ALS. Kids get the chance to receive their very own special package full of information and treats tailored to their age. So let us know if you have a child, or know of a child, who has been affected by ALS. We’ll send them a Kare Pack with lots of goodies!
If you would like more information regarding our programs for children or would like to receive a Kids Kare Pack, please contact us at firstname.lastname@example.org or call 888.257.1717 ext. 118.
Some additional resources that may be helpful:
ALS Activity Book - Helping Children Understand the Puzzle of ALS (originally put together by the St. Louis Chapter and may contain regional information): This hands-on-tool is a resource for professionals working with children affected by ALS. It is also designed for families to use together to help children and grandchildren understand the effects of ALS.
KidsHealth.org - A website full of helpful information about ALS and how to help your child better understand what is happening.
My Poppo - An illustrated children's book series about coming to terms with a terminally ill relative.
Children of ALS Blog - The daughter of a person living with ALS started this blog in order to address the toll that having a parent with ALS takes on teen/young adult children; by sharing experiences, she has formed an on-line support group.
Hope Loves Company - The mission of Hope Loves Company is to provide emotional and educational support to children and young adults who have family members battling ALS.
Loss and Grief Manual - This educational book is designed for grief professionals, patients & families and those left behind from ALS to communicate about the various losses caused by ALS. It has sections for patients, parents, survivors, and children of varying ages. (Originally put together by the St. Louis Chapter and may contain regional information)
National Alliance for Grieving Children - Promotes awareness of the needs of children and teens grieving a death and provides education and resources for anyone who wants to support them.