Ice Bucket Challenge Progress


Hurricane Recovery Irma

Disaster Resources for People Living with ALS

As the devastating effects of Hurricane Irma continue to unfold, The Florida Chapter is working diligently to assess the well-being and needs of people living with ALS and their families throughout the state. This is our first priority – to ensure that our patients are safe and secure and that they have what they need to focus on their health with as little disruption as possible.

While we are not a disaster response organization or direct care provider, we're still here to help in any way that we can!  We've assembled the following information and resources to help you and your family in the recovery process from this unprecedented storm, and should you need non-emergency assistance, call or email us at 1-888-257-1717 or  To reach out directly to your Regional Program Manager, CLICK HERE.

For information and questions regarding Durable Medical Equipment issues, contact:

Ability Medical Supply: 888-572-7603

Numotion: Telephone Numbers By Region:

Below is a list of resources for people with ALS and their families who are affected by Hurricane Irma. Please contact us with any additional questions you may have.

Residents who sustained losses in declared counties can apply for assistance by registering online at Residents who suffered damages from the storm may register now, and if their county is later included in the declaration, the application will be processed automatically.  To find out if your county is declared, CLICK HERE.

If you do not have access to the internet, you may register by calling:

1-800-621-3362 (FEMA) or 1-800-462-7585 (TTY).

If you use 711 Relay or Video Relay Service call 1-800-621-3362.

Residents are also encouraged to download the FEMA App to begin the registration process.

The toll-free telephone numbers will operate from 7:00 a.m. to 10:00 p.m. (local time) seven days a week until further notice.


Travel and Housing Resources -

Although Hurricane Irma has dissipated completely and no longer poses a weather threat to Florida, the effects of the storm will continue to be felt by those attempting to travel in impacted areas of the state, whether visiting, returning home, or assisting with recovery efforts.  Evacuation orders and curfews continue to be in effect for many areas.  For those needing accommodations, see Expedia and Airbnb links and information here:

Find temporary housing directly:



FEMA: 800-621-3362

FEMA-Apply for Assistance: &

Generator Reimbursement – Individuals and Households Program Fact Sheet:

FEMA Assistance Fact Sheets

Prepare for Emergencies Now: Information for People with Disabilities Brochure - CLICK HERE TO DOWNLOAD

Evacuee Hotels via FEMA: 

FEMA's Transitional Shelter Assistance (TSA) Program - Provides short-term lodging assistance for evacuees who are not able to return home for an extended or indeterminate period of time following a disaster:



Red Cross

To find open shelters still available in your area, CLICK HERE:

Download FREE Red Cross Mobile Apps today, in the Apple App Store or Google Play, For more information, visit:

CLICK HERE to report with the Red Cross that you and your family are safe.


Red Cross-Central Florida

Florida's Space Coast 386-226-1400 - Brevard, Flagler, Volusia

Greater Orlando 407-894-4141 - Orange, Osceola, Seminole

Mid-Florida 863-294-5941 - Citrus, Hernando, Lake, Pasco, Polk, Sumter

Southwest Florida 941-379-9300 - Charlotte, DeSoto, Hardee, Manatee, Sarasota

Tampa Bay 813-348-4820 - Hillsborough, Pinellas


Red Cross-North Florida

Northeast Florida 904-358-8091 -  Alachua, Baker, Bradford, Clay, Columbia, Duval, Gilchrist, Levy, Marion, Nassau, Putnam, St. Johns, Union

Capital Area 850-878-6080 Dixie, Franklin, Gadsden, Hamilton, Jefferson, Lafayette, Leon, Liberty, Madison, Suwannee, Taylor, Wakulla

Northwest Florida 850-432-7601 Bay, Calhoun, Escambia, Gulf, Holmes, Jackson, Okaloosa, Santa Rosa, Walton, Washington


Red Cross-South Florida

Broward County 954-797-3800 Broward

Florida's Coast to Heartland 772-562-2549 Indian River, Okeechobee, Highlands

Florida's Southern Gulf  - 239-596-6868 Collier, Glades, Hendry, Lee

Greater Miami and The Keys 305-644-1200 Miami-Dade, Monroe

Palm Beach and Martin County 561-833-7711 Palm Beach, Martin



The Florida Alliance for Assistive Services and Technology (FAAST)

FAAST (, the Florida Alliance for Assistive Services and Technology program, is administered through the Florida Department of Education, Division of Vocational Rehabilitation and is federally funded by the Rehabilitation Services Administration (RSA) under the Assistive Technology Act of 1998, as amended in 2004 (P.L. 108-364). 

Since its inception in 1998, FAAST has been and continues to be a resource to provide Floridians free access to information, referral services, educational programs, and publications in accessible format on extensive topics related to disability rights, laws/policies, and funding opportunities for assistive technology.

If you had any Assistive Devices lost or damaged during the Hurricane, fill out the quick survey HERE.



Healthcare Ready

Healthcare Ready is a nonprofit that works to ensure patient access to healthcare, including medicines, during times of disaster.  Healthcare Ready has activated its virtual Emergency Operations Center (EOC) to support healthcare and public health response operations to Hurricane Irma.  Visit them here:



U.S. Department of Veterans Affairs 

For information on U.S. Department of Veterans Affairs (VA) closures, please click HERE.

Veterans from storm-impacted areas who require immediate assistance may contact: VA Health Resource Center Disaster Hotline: 1-800-507-4571.

In central Florida, Veterans needing emergency medical services may visit the Orlando VAMC’s Urgent Care facility at 13800 Veterans Way in Lake Nona. The medical center is scheduled to remain open 24 hours a day, 7 days a week, throughout the storm period.



Looking to Volunteer?

There are communities throughout the entire state in need of volunteers to help with supplies, clean-up, rebuilding and more.  If you'd like to sign up to volunteer, please sign up here:

If you would like to volunteer to help a family living with ALS, or you are a registered family in need of clean-up help, please contact our Chapter at 888.257.1717.